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Showing posts from January, 2021

What’s next

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 Having symptoms still    Plan is to scan me in April so lots of waiting to do    Medically Home is monitoring me from here. Lucky to have nurses like Emily and Melissa and Sarah keeping an eye on my labs and survey.   Still needing IV fluids at home as it’s really hard to take in anything by mouth My heart rate was low over the weekend so they sent out someone for an EKG and then Melissa came for a blood draw.   My Potassium and Magnesium are super low so they are sending out some replacements today.   Dr Clark was right on about this week after chemo.  I think I expected to be on the rebound but the chemo and radiation’s are still damaging the tissue.   It’s like constant hand foot and mouth with sores all over my gums, tongue and palate.  Makes it really hard to swallow.   I’ve been taking pain meds steadily with magic mouthwash to help a little but it’s nearly impossible to get anything down.  Hoping maybe another week and should see improvement.  I have an appointment on Friday to

Radiation Journal

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 11/23 Had a nice thanksgiving dinner last night.  Figured we would do it early because my food aversions will be back on Thursday and poultry hasn’t cut it before so I wasn’t expecting it to be any better for thanksgiving.  Tried Nothing Bundt Cakes and it was a big hit. Liz brought over quebrada treats too and kate made an apple crisp.  It’s all about deserts right?  This morning I got up and put on my new “absolutely radiant” shirt from Jen.  Love it!   Perfect for my first day.   I’m not feeling nervous - just really want to get it overwith.  I get in and the machine is an hour behind already.  There goes the whole “in and out in fifteen minutes” thing.    So I was in for about a half hour it was very spaceage  big white machine moving all around  Q 11/24 2 down 33 to go.  4 chemo cycles down and 6 to go.   Took some Ativan today before my appointment.  Made it a lot faster and less stressful.  Problem is I fell asleep in the waiting room waiting to see Dr Chan and they all wondere