State of Miah’s Mind- an adventure with cancer

Finally over the hump of the heavy duty induction chemo.  Overall I must say I have weathered it quite well.  Main complaints are fatigue and everything tastes like it has too much baking soda in it leaving a taste in my mouth.  I’m tolerating water much better than before and my labs this cycle are far better.  I think it’s because we went without the cisplatin.  Unfortunately I will be getting a weekly dose of it with radiation but it’s less than half the dose of before so it should affect me less.  I just wish I could get my heart rate below 100.  Hopefully this week it will happen.  The medically at home people call me every time to make sure I’m feeling ok.  Of course I am.  The best thing is that all of my sinus symptoms are gone.  No congestion, pain or facial numbness.  Gone.  And the ringing in my ears is far less than it was before.  Everyone says I am quiet when I sleep now and I have to say it’s probably why I feel so good.  Had a really nice dinner with Maureen last night.

 Note to self. And anyone who trusts healthcare. Nobody is perfect and mistakes can be made.   Apparently the cat scan I had on Wednesday did not include the head and neck. Only the chest.   This defeats the purpose of loading me up with radiation and contrast to find out if my cancer retreated from chemo.   So this question goes unanswered.  The mistake was easy to make. They put orders in for two separate CT scans but only scheduled one. It felt as though they were doing it as I was in and out of the machine head to waist but no.  They didn’t do the head and neck.    I was also fitted for the head stabilizer for proton beam.  It’s quite the contraption as you can not move at all.  The people were super nice and they did another CT for Dr Chan.  I am hoping she may be able to see what the other CT couldn’t but I haven’t heard back from her yet and the results aren’t in Epic.   On a positive note, I got the best hat ever in the mail.  Ordered it on Etsy.  Don’t laugh.  Ok. Laugh becaus

 Went Monday to have my head Hennaed by Mona Bhatt. She did a nice job. I wish it was a little darker but do like the way it changes my bald head and almost looks like hair.  Patrick came with me and provided advice along the way.  We have a hidden turtle, butterfly and dragon fly.   Went today to have a CT and find out how I responded to the first two rounds of chemo    Alas they only did the CT of my chest and did not do the head and neck which defeated the purpose of the CT.  What a waste of radiation and contrast   It didn’t give me any helpful information.   After that CT I went to radiology oncology in the basement of the COX building   They made a mold of my upper body and shoulders to hold me still during radiation  looks like I start November 23rd   

 It’s Monday and I am approaching the last of the three big treatments.   I was ready for another bad one but because my ears are ringing constantly and labs went wonky (potassium, magnesium and platelets this cycle) Dr Wirth decided to skip the cisplatin and will just give me Taxotere and the 5FU pump.  Hoping that means the symptoms will be less but also hope it doesn’t change my chances.  I just want the gold standard no matter what the side effects because i am totally surviving this and don’t want it coming back.   She says it’s fine because she will bring back the cisplatin for the weekly chemo in conjunction with radiation.  This all starts November 23rd.  And it’s so hard to believe it’s November already but it also means I’m closer to the 13th of January. My last day of radiation.   Busy week this week   I have a mammogram Friday followed by chemo.  (apparently they found something on CT that needs to be investigated further)  Wednesday I meet with Dr Chan for CT mapping and t