Search This Blog

State of Miah’s Mind- an adventure with cancer

Photo shoot

Get link
Facebook
X
Pinterest
Email
Other Apps

- December 11, 2020

Sharing pics from our mini photo shoot. Thanks to Elizabeth Orrell for taking these fun edgy pics to commemorate 2020 and how much we have all pushed through to get

through.

Get link
Facebook
X
Pinterest
Email
Other Apps

Comments

Radiation Journal

- January 07, 2021

11/23 Had a nice thanksgiving dinner last night. Figured we would do it early because my food aversions will be back on Thursday and poultry hasn’t cut it before so I wasn’t expecting it to be any better for thanksgiving. Tried Nothing Bundt Cakes and it was a big hit. Liz brought over quebrada treats too and kate made an apple crisp. It’s all about deserts right? This morning I got up and put on my new “absolutely radiant” shirt from Jen. Love it! Perfect for my first day. I’m not feeling nervous - just really want to get it overwith. I get in and the machine is an hour behind already. There goes the whole “in and out in fifteen minutes” thing. So I was in for about a half hour it was very spaceage big white machine moving all around Q 11/24 2 down 33 to go. 4 chemo cycles down and 6 to go. Took some Ativan today before my appointment. Made it a lot faster and less stressful. ...

Two month scan

- March 23, 2021

3/23 I’m walking on sunshine and it’s time to feel good. https://youtu.be/CKh0dLIuIu8 I’m all over the place this morning. Dropped kate at the bus at 6. Took a shower (something I usually don’t do it there isn’t an hour to rest after) Have early appointments with Dr Chan and Dr Wirth. Waiting to hear the results of my two month scans. Yes. It’s been two months since I was treated with chemo and radiation. It’s been the hardest two months outside of the times when declan had open heart surgery and my dad was at the brigham. I struggle with appetite and fatigue and am the only person I know who doesn’t want to lose weight. I now weigh less than I did when I got married at 22. And to be honest I have plenty to lose. But in the right way. I look in the mirror and don’t recognize myself sometimes. The buzz cut with the cr...

Cycle 3 week 1

- November 06, 2020

Note to self. And anyone who trusts healthcare. Nobody is perfect and mistakes can be made. Apparently the cat scan I had on Wednesday did not include the head and neck. Only the chest. This defeats the purpose of loading me up with radiation and contrast to find out if my cancer retreated from chemo. So this question goes unanswered. The mistake was easy to make. They put orders in for two separate CT scans but only scheduled one. It felt as though they were doing it as I was in and out of the machine head to waist but no. They didn’t do the head and neck. I was also fitted for the head stabilizer for proton beam. It’s quite the contraption as you can not move at all. The people were super nice and they did another CT for Dr Chan. I am hoping she may be able to see what the other CT couldn’t but I haven’t heard back from her yet and the results aren’t in Epic. On a positive note, I got the best hat ever in the...