Sharing pics from our mini photo shoot. Thanks to Elizabeth Orrell for taking these fun edgy pics to commemorate 2020 and how much we have all pushed through to get
3/23 I’m walking on sunshine and it’s time to feel good. https://youtu.be/CKh0dLIuIu8 I’m all over the place this morning. Dropped kate at the bus at 6. Took a shower (something I usually don’t do it there isn’t an hour to rest after) Have early appointments with Dr Chan and Dr Wirth. Waiting to hear the results of my two month scans. Yes. It’s been two months since I was treated with chemo and radiation. It’s been the hardest two months outside of the times when declan had open heart surgery and my dad was at the brigham. I struggle with appetite and fatigue and am the only person I know who doesn’t want to lose weight. I now weigh less than I did when I got married at 22. And to be honest I have plenty to lose. But in the right way. I look in the mirror and don’t recognize myself sometimes. The buzz cut with the cr...
Note to self. And anyone who trusts healthcare. Nobody is perfect and mistakes can be made. Apparently the cat scan I had on Wednesday did not include the head and neck. Only the chest. This defeats the purpose of loading me up with radiation and contrast to find out if my cancer retreated from chemo. So this question goes unanswered. The mistake was easy to make. They put orders in for two separate CT scans but only scheduled one. It felt as though they were doing it as I was in and out of the machine head to waist but no. They didn’t do the head and neck. I was also fitted for the head stabilizer for proton beam. It’s quite the contraption as you can not move at all. The people were super nice and they did another CT for Dr Chan. I am hoping she may be able to see what the other CT couldn’t but I haven’t heard back from her yet and the results aren’t in Epic. On a positive note, I got the best hat ever in the...
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